This published via @ajmc_journal - Dosing, Duration of Therapy Examined in Peanut Allergy Studies https://shar.es/1qW7yS
#FitesVsNuts
Tuesday, June 23, 2015
Life happens... Plans change!
As we went to bed, prayed through anxieties and accepted and anticipated day one of oral immunotherapy, God had other plans. Our doctor had a family emergency and messaged me in the night to let me know he needed to cancel our appointment.
Dr. Mayer was so apologetic, knowing how long it has taken for us to get to this day. I am a firm believer that family comes first and when family needs us, we do what we must do!
As surprised as I was to receive the message in the middle of the night as I stayed up watching the storm that loomed around us, there was a certain sense of peace that life happens and we are not in control. The God that created the universe had a different plan for our day.
As quickly as I was caught by surprise, my prayers now turned to the family member of our doctor that was now in need.
Day one of Oral immunotherapy may be delayed, but it is imminent. Dr. Mayer will be fitting us into his summer schedule and the timing will be exactly as it should be.
Until then, we will enjoy the summer, get away for vacation and know that God's timing is always perfect.
Friday, June 19, 2015
Countdown to OIT - 4 days!
It is with both excitement and fear that we prepare for the big day - day 1 of OIT - Oral Immunotherapy. We have waited 2 years for this day and we are as ready as we will ever be.
The idea of not worrying every time my kids leave the house seems to good to be true.
The idea of not checking each label and calling or emailing each manufacturer to verify the product is actually nut free.
The idea of my kids not missing out on all of the fun and birthday goodies. Sadly, they would have appreciated this so much more in elementary school during the many birthdays they were unable to partake in snack.
The idea of stopping at a bakery and buying anything without worry.
The overall idea of living life and not fearing every new food and every new situation.
The cost?
The Risk?
The cost is high. A loss of a certain amount of freedom.
After each does (1 or 2 times each day) all 3 of my kids will need to not doing anything physically exerting in order to avoid raising their body temperature, metabolism, which in turn can trigger the body to react adversely to the dose. The "observation/inactive" period is 2-4 hours. Two hours minimal and four hours is ideal.
Driving 1 1/2 hours one way to West Bloomfield seems to be a big deal, however before finding Dr. Mayer, I was preparing to drive or fly across country if necessary.
The financial cost -- of which I have no idea.
The psychological cost. Imagine the realization of eating poison - knowing it could potentially kill you.... that is what my kids will be experiencing. Eating the very thing that is at risk for causing a life threatening allergic reaction.
This is at a much lower dose of course, and supervised by our allergist who has successfully desensitized people with very severe food allergies like ours.
God has led us to this place, and it is with a bit of anxiety we move into the beginning.
The beginning of new challenges, but also the beginning of reclaiming our quality of life. My children deserve to live and not be in fear of everything they eat.
Here we go!
The idea of not worrying every time my kids leave the house seems to good to be true.
The idea of not checking each label and calling or emailing each manufacturer to verify the product is actually nut free.
The idea of my kids not missing out on all of the fun and birthday goodies. Sadly, they would have appreciated this so much more in elementary school during the many birthdays they were unable to partake in snack.
The idea of stopping at a bakery and buying anything without worry.
The overall idea of living life and not fearing every new food and every new situation.
The cost?
The Risk?
The cost is high. A loss of a certain amount of freedom.
After each does (1 or 2 times each day) all 3 of my kids will need to not doing anything physically exerting in order to avoid raising their body temperature, metabolism, which in turn can trigger the body to react adversely to the dose. The "observation/inactive" period is 2-4 hours. Two hours minimal and four hours is ideal.
Driving 1 1/2 hours one way to West Bloomfield seems to be a big deal, however before finding Dr. Mayer, I was preparing to drive or fly across country if necessary.
The financial cost -- of which I have no idea.
The psychological cost. Imagine the realization of eating poison - knowing it could potentially kill you.... that is what my kids will be experiencing. Eating the very thing that is at risk for causing a life threatening allergic reaction.
This is at a much lower dose of course, and supervised by our allergist who has successfully desensitized people with very severe food allergies like ours.
God has led us to this place, and it is with a bit of anxiety we move into the beginning.
The beginning of new challenges, but also the beginning of reclaiming our quality of life. My children deserve to live and not be in fear of everything they eat.
Here we go!
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